So many of us have had the same experience when, after being diagnosed with Trigeminal Neuralgia, we finally get our long awaited MRI back. All that waiting, thinking THIS is finally going to reveal why our child is in excruiciating pain. Only to be told the MRI is "Clear". There is no compression. Then, we … Continue reading Do I Have the Right MRI? What If My MRI Is “Clear”?
I’d say it’s the words we didn’t want to hear, the diagnosis we did not want. But since none of us had probably ever heard of Trigeminal Neuralgia, your first reaction was likely, “Huh?” There is a dearth of information out there, especially good information and especially for pediatric patients with TN. I feel the … Continue reading The Things I Wish I’d Known When My Child Was Diagnosed With TN, alternatively titled, “Do You Doctors Know ANYTHING?”
These articles are not necessarily specific to TN, but are good reads relating to the journey of chronic illness, chronic pain, illness in children, or being the parent/caregiver. Some may help you understand your child better. Hopefully some will resonate with you about your experience. 1. Why You Should Never Ask 'Have You Tried...?' http://www.huffingtonpost.com/lottie-v-ryan/why-you-should-never-ask-_b_6057062.html