This category contains 8 posts

The Joy of Dental Work

I am embarrassed to say how long we went with our daughter NOT going to the dentist once TN set in.  She had been to the dentist only 3 weeks prior to her first attack, which was one of the things that helped us rule out dental problems from nearly Day 1.  Clear, healthy x-rays … Continue reading

Education with Trigeminal Neuralgia: College

We LOVE the Young Patient’s Committee of the Facial Pain Association.  One of the reasons we are called ‘Youngest of the Young Patients’ is in homage to them.  They work hard to serve the younger TN patients, which for them are patients under 40.  They have good representation on their board of upper high school … Continue reading

Do I Have the Right MRI? What If My MRI Is “Clear”?

Watch this, then we will talk: http://www.facepain.us/linskey_should%20trigeminal%20neuralgia%20patients%20get%20neuroimaging.html You will all be told your child is too young, the MRI is clear, there is just no explanation for their TN, they will have to be on mind numbing medications maybe for the rest of their lives…… But did you hear what this video said? 100%. One … Continue reading

The Things I Wish I’d Known When My Child Was Diagnosed With TN, alternatively titled, “Do You Doctors Know ANYTHING?”

I’d say it’s the words we didn’t want to hear, the diagnosis we did not want.  But since none of us had probably ever heard of Trigeminal Neuralgia, your first reaction was likely, “Huh?” There is a dearth of information out there, especially good information and especially for pediatric patients with TN.  I feel the … Continue reading

Why We Chose Microvascular Decompression (MVD)

My family and I have been asked by many people, for many different reasons, why we chose to pursue Microvascular Decompression for our daughter.  Friends and family were curious and trying to understand this crazy journey we are on.  TN friends and family are looking for information and to see if there is something to … Continue reading

The Power of Not Being Alone

We have had an amazing experience this week.  We have a secret little corner of Facebook for parents of TN patients.  We share info, ask questions, and sometimes vent at the basic wrong-ness of having a child fighting this beast. A couple of weeks ago, one of the families posted that they would be in … Continue reading

The Pain Journal

I’m so sorry to be making this post.  I’ve stopped several times and had to walk away.  It’s hard to talk about the reality of the pain your child is going through.  At times you develop a clinical distance from the emotional part of it, because you have to in order to get through the … Continue reading

Semi-Related Articles

These articles are not necessarily specific to TN, but are good reads relating to the journey of chronic illness, chronic pain, illness in children, or being the parent/caregiver.  Some may help you understand your child better.  Hopefully some will resonate with you about your experience. 1. Why You Should Never Ask ‘Have You Tried…?’ http://www.huffingtonpost.com/lottie-v-ryan/why-you-should-never-ask-_b_6057062.html