This makes many of us TN parents absolutely insane. Especially those of us whose children were finally diagnosed correctly and then treated (at least somewhat) successfully. We know the damage that can be done to our children and families when we keep running up against incorrect diagnoses. All the literature says that Trigeminal Neuralgia occurs … Continue reading Pediatric TN Challenges: “Doesn’t Happen In Kids.”
I hate to put this challenge so close to the top of our list, but it has to be done. I know there are some absolutely wonderful doctors out there - with some effort, persistence, and TN Mama networking, we found one we will always be thankful for. Due to the rarity of Trigeminal Neuralgia, … Continue reading Pediatric TN Challenges: Doctors
Having Trigeminal Neuralgia is painful and overwhelming and hard beyond the English language’s ability to describe it. Someone with TN, in my experience, often does not even try to really communicate the depth of the battle that it is, so I can certainly not explain it sufficiently. If you child has Trigeminal Neuralgia, they are … Continue reading Pediatric TN Challenges: Communication
I’m so sorry to be making this post. I’ve stopped several times and had to walk away. It’s hard to talk about the reality of the pain your child is going through. At times you develop a clinical distance from the emotional part of it, because you have to in order to get through the … Continue reading The Pain Journal
Let’s talk about the first steps you need to take now that you believe your child may have Trigeminal Neuralgia. Thank you to Stacie for developing the initial list on this! I've added and augmented to create this post. Start keeping a Pain Journal There is an entire post dedicated to this, so I … Continue reading My Child has Trigeminal Neuralgia, Now What?
It is hard to give specific advice in this area because it will vary so much, not only age group to age group, but child to child. However, we want to do our best to give you some guidance based on what we have learned in our years on this path with our kids. They … Continue reading How Do I Talk to My Child about their Trigeminal Neuralgia?