TN Sucks. It’s a terrible, awful, very bad, horrendously painful condition. There is not a way to truly express how heart wrenching it is to have your child afflicted with Trigeminal Neuralgia. If I could rip TN apart with my bare hands, stomp it into the ground, and give it a few stabs with a carving knife for good measure – I would probably save myself serious cash in therapy.
Trigeminal Neuralgia is a rare condition that, in theory, affects people over the age of 50. If you have TN and are under the age of 40, you qualify as a “Young Patient” on support sites. A pediatric TN patient stops the TN community in their tracks, and too often baffles pediatric doctors.
But we have walked this path with our children. Four of us “TN Mamas” have come together to share our stories, resources, and our hard-earned knowledge in the hopes that it will make someone else’s journey just a little easier. We have fought our way to diagnosis, gone from doctor to doctor to doctor trying to find someone who can help us, developed love/hate relationships with the medications needed, and handed our babies over to neurosurgeons and faced that waiting room. We hope that our story can help your story.
Love, Hugs & Hope,
Tracy, Megan, Ang, & Stacie