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Must-Listen 29 minute Podcast on TN. Seriously. Just do it.

This evening I listened to a 26 minute interview done by British Medical Journal’s Clinical Evidence, with Joanna Zakrzewska and Dr. Mark Linskey.  If you are trying to understand Trigeminal Neuralgia for yourself, your child, a patient, or someone you care about, I really believe this is a must listen.  This interview distills an amazing … Continue reading

Do I Have the Right MRI? What If My MRI Is “Clear”?

Watch this, then we will talk: http://www.facepain.us/linskey_should%20trigeminal%20neuralgia%20patients%20get%20neuroimaging.html You will all be told your child is too young, the MRI is clear, there is just no explanation for their TN, they will have to be on mind numbing medications maybe for the rest of their lives…… But did you hear what this video said? 100%. One … Continue reading

It’s Not Just Kids Being Kids… Recreational Drug and Alcohol Use

This may be a little jarring to those of you with younger TNKids, but we are in contact with families of kids up to age 20, and not so out of the realm of possibility at all for older teens.  It may also seem inconceivable given how poorly your child is doing and the fact … Continue reading

The Things I Wish I’d Known When My Child Was Diagnosed With TN, alternatively titled, “Do You Doctors Know ANYTHING?”

I’d say it’s the words we didn’t want to hear, the diagnosis we did not want.  But since none of us had probably ever heard of Trigeminal Neuralgia, your first reaction was likely, “Huh?” There is a dearth of information out there, especially good information and especially for pediatric patients with TN.  I feel the … Continue reading

Why We Chose Microvascular Decompression (MVD)

My family and I have been asked by many people, for many different reasons, why we chose to pursue Microvascular Decompression for our daughter.  Friends and family were curious and trying to understand this crazy journey we are on.  TN friends and family are looking for information and to see if there is something to … Continue reading

The Power of Not Being Alone

We have had an amazing experience this week.  We have a secret little corner of Facebook for parents of TN patients.  We share info, ask questions, and sometimes vent at the basic wrong-ness of having a child fighting this beast. A couple of weeks ago, one of the families posted that they would be in … Continue reading