I received my official TN diagnosis in the summer of seventh grade. It was not until September that I learned how the medications and new pain would affect me in school.
Daily Living
Trigeminal Neuralgia, the Dentist, and Kids: Best Practices
I am embarrassed to say how long we went with our daughter NOT going to the dentist once TN set in. She had been to the dentist only 3 weeks prior to her first attack, which was one of the things that helped us rule out dental problems from nearly Day 1. Clear, healthy x-rays … Continue reading Trigeminal Neuralgia, the Dentist, and Kids: Best Practices
It’s Not Just Kids Being Kids… Recreational Drug and Alcohol Use
This may be a little jarring to those of you with younger TNKids, but we are in contact with families of kids up to age 20, and not so out of the realm of possibility at all for older teens. It may also seem inconceivable given how poorly your child is doing and the fact … Continue reading It’s Not Just Kids Being Kids… Recreational Drug and Alcohol Use
The Power of Not Being Alone
We have had an amazing experience this week. We have a secret little corner of Facebook for parents of TN patients. We share info, ask questions, and sometimes vent at the basic wrong-ness of having a child fighting this beast. A couple of weeks ago, one of the families posted that they would be in … Continue reading The Power of Not Being Alone
The Pain Journal
I’m so sorry to be making this post. I’ve stopped several times and had to walk away. It’s hard to talk about the reality of the pain your child is going through. At times you develop a clinical distance from the emotional part of it, because you have to in order to get through the … Continue reading The Pain Journal
My Child has Trigeminal Neuralgia, Now What?
Let’s talk about the first steps you need to take now that you believe your child may have Trigeminal Neuralgia. Thank you to Stacie for developing the initial list on this! I've added and augmented to create this post. Start keeping a Pain Journal There is an entire post dedicated to this, so I … Continue reading My Child has Trigeminal Neuralgia, Now What?
How Do I Talk to My Child about their Trigeminal Neuralgia?
It is hard to give specific advice in this area because it will vary so much, not only age group to age group, but child to child. However, we want to do our best to give you some guidance based on what we have learned in our years on this path with our kids. They … Continue reading How Do I Talk to My Child about their Trigeminal Neuralgia?
Youngest of the Young Patients 