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Pediatric TN Issues: Four Key Points

As we have mentioned, this site is administered by four TN Mamas:  Tracy, Meg, Stacie & Ang.  We all came together because we all have kids with this awful condition.  Different pairs of us met just from having kids with TN, but the four of us really came together and bonded and found this purpose … Continue reading

Pediatric TN Challenges: “Doesn’t Happen In Kids.”

This makes many of us TN parents absolutely insane.  Especially those of us whose children were finally diagnosed correctly and then treated (at least somewhat) successfully.  We know the damage that can be done to our children and families when we keep running up against incorrect diagnoses. All the literature says that Trigeminal Neuralgia occurs … Continue reading

Pediatric TN Challenges: Doctors

I hate to put this challenge so close to the top of our list, but it has to be done.  I know there are some absolutely wonderful doctors out there – with some effort, persistance, and TN Mama networking, we found one we will always be thankful for. Due to the rarity of Trigeminal Neuralgia, … Continue reading

Pediatric TN Challenges: Communication

Having Trigeminal Neuralgia is painful and overwhelming and hard beyond the English language’s ability to describe it.  Someone with TN, in my experience, often does not even try to really communicate the depth of the battle that it is, so I can certainly not explain it sufficiently. If you child has Trigeminal Neuralgia, they are … Continue reading