About Us

TN Sucks.  It’s a terrible, awful, very bad, horrendously painful condition.  There is not a way to truly express how heart wrenching it is to have your child afflicted with Trigeminal Neuralgia.  If I could rip TN apart with my bare hands, stomp it into the ground, and give it a few stabs with a carving knife for good measure – I would probably save myself serious cash in therapy.

Trigeminal Neuralgia is a rare condition that, in theory, affects people over the age of 50.  If you have TN and are under the age of 40, you qualify as a “Young Patient” on support sites.  A pediatric TN patient stops the TN community in their tracks, and too often baffles pediatric doctors.

But we have walked this path with our children.  Four of us “TN Mamas” have come together to share our stories, resources, and our hard-earned knowledge in the hopes that it will make someone else’s journey just a little easier.   We have fought our way to diagnosis, gone from doctor to doctor to doctor trying to find someone who can help us, developed love/hate relationships with the medications needed, and handed our babies over to neurosurgeons and faced that waiting room.  We hope that our story can help your story.

Love, Hugs & Hope,

Tracy, Megan, Ang,  & Stacie

3 replies »

    • I hope you have reached out for support. There are many great FB sites and great people there that can help you on your journey.

      I am now 51, but have been a ‘TN Warrior’ for 30+ years. I am a mom to three young boys. I could not imagine watching them suffer through this kind of pain!

      That kind of torture might be the only thing worse that TN itself. 😦

      God bless.
      Lee in Canada xx

      Like

  1. I give you TN mamas so much credit. I think you have to have more strength than those of us that suffer. I was diagnosed at 37–I didn’t know that classified me as a young patient–I’ll be 50 this year so am no longer young :-). I have often though to myself that I am thankful that I have this horrific disease and not my son. I know if he were suffering like this that I would get through it because that is what we mothers do–but I don’t know that I would ever be able to breathe properly again.

    Keep fighting for your little ones. They are so lucky to have mamas like you.

    Like

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